Resources for Families
A Resource Handbook for Supports and Services for Persons with a Dual Diagnosis, 2002 Edition by Concerned Parents of Toronto Inc. English PDF version.
Guide des Ressources pour les Soutiens et les Services Offerts a Toronto aux Personnes Presentant un Double Diagnostic, Edition 2002 by Concerned Parents of Toronto Inc. French PDF version.
Pathways In Education Peel A site created to provide educational resources to families with special needs, educators and developmental service providers in the region of Peel.
York Support Services
Supports and Services for Persons with a Dual Diagnosis - A Resource Manual for York Region Families
Supports and Services for Persons with a Dual Diagnosis. A Resource Manual for Simcoe Region Families
Asperger's Society of Ontario Provides education, resources and support to individuals with AS, their families, educators, medical and mental health professionals, employers, government and the community, to enable individuals with AS to realize their potential as fully contributing members of their community.
Building the Path to Home by the Dual Diagnosis Implementation Committee of Toronto Housing Issues Working Group. There are links to the guide at: www.camh.net/Care_Treatment/Resources_for_Professionals or
www.camh.net/Care_Treatment/Program_Descriptions/Mental_Health_Programs/Dual_Diagnosis/dual_diagnosis_familysig.html
This is an Online Guide to Finding Sustainable Housing for People with a Dual Diagnosis. This guide is about housing – and a lot more. Building the Path to Home is about finding a place to live for a person who has a developmental disability and mental health problems that takes into account their personal preferences and their needs. Housing is only sustainable for someone if they have a strong, caring safety net or support network. So this guide includes information about how to access housing, and also talks about how to find all the pieces of support needed to make the housing situation work. It includes:
- A simple way of asking whether a person might have an intellectual disability and/or a mental health problem
- Information to help you support an individual with a dual diagnosis to find, sustain or access support in their housing situation
- Ideas about how to talk to someone with a dual diagnosis about their need for additional support or a change in their housing situation
- Information about the key services in the developmental and mental health systems
- Contact information and web links for housing and support agencies
Exceptional Parent Magazine includes an annual resource guide.
Family Alliance Ontario is an alliance of citizens that offers knowledge, tools and networking opportunities to individuals with disabilities and their families to assist them to realize a vision that includes having valued relationships, choice and control in their lives, and enables inclusion through meaningful contribution and participation in their communities.
Family Association for Mental Health Everywhere An Ontario resource that provides advocacy, education, referrals and supportive counseling to families that have a mentally ill relative of any diagnosis, including dual diagnosis.
Mary Centre Support and respite care information.
Dual Diagnosis Web Site of Peel and Halton Regions Child Development Resource Connection Peel. Provides information regarding services, events, resources, links, etc.
Planned Lifetime Advocacy Network (Plan) By and for families committed to future planning and securing a good life for their relative with a disability.
Respite Services Funded by the Ministry of Community and Social Services and the Ministry of Children and Youth Services. Sponsored by Geneva Centre for Autism
Royal College of Psychiatrists, UK, Learning Disabilities section easy to read pamphlets that describe depression and mental health issues in those with developmental disabilities.
Special Education Ontario Ministry of Education.
Special Kids, Special Parents was written by a team of seven parents of children with special needs, a group called Ensemble based in Essex, Ontario. This book offers encouragement and practical suggestions on a number of key issues. The book covers four main topics, including emotional health, relational health, self-care, and transitions. Each section includes a worksheet to allow readers to reflect on their own lives in relation to the topic addressed. For more information about Special Kids, Special Parents, contact Lisa Raffoul at ensemble@communitylivingessex.org or call 519-776-6486 ext. 225. Click here for book order form PDF
Educational Resources
Atlas - Global resources for persons with intellectual disabilities. 2007. World Health Organization (WHO).
Certificate in Dual Diagnosis Program, York University, Division of Continuing Education
A Comprehensive Guide to Intellectual & Developmental Disabilities. (2007). Brown, I., & Percy, M. (Eds.). Baltimore: Paul H. Brookes Publishing.
Drs. Ivan Brown and Marie Percy have worked about three years on this textbook, and are extremely pleased that the final product represents an enormous amount of information about our field. It will be a valuable resource for current practitioners and academics, as well as a "comprehensive guide" to students learning about intellectual and developmental disabilities. Drs. Brown and Percy are especially indebted to the more than 70 authors who contributed to the book's 45 chapters. A great deal of wisdom and expertise is represented by this set of authors!
Consensus guidelines for primary health care of adults with developmental disabilities. Includes Behavioural and Mental Health Guidelines, 18-25
"Could This Happen To You" Prepared by the New York State Commission on Quality of Care. Click on link to "Could This Happen to You." A teaching tool intended primarily for direct care staff. The objective of the series is to prevent mishaps in mental hygiene facilities/programs by challenging staff, sparking reflection and discussion about policies and practices, with the need to clarify to revise these to reduce the likelihood of similar incidents. Utilizing case studies, it promotes quick reading and easy access for both direct care and management staff to review their own operations.
Criminal Offenders with Mental Retardation: Risk Assessment and the Continuum of Community-based Treatment Programs Author: Edwin J. Mikkelsen, M.D. & Wayne J. Stelk, Ph.D. NADD Product OF99-002B. 126 pages. Printed 1999. ISBN: 1-57256-011-8.
Developmentally Disabled Persons with Sexual Behavior Problems (2 Ed): Treatment, Management and Supervision by Gerry D. Blasingame, MA. Wood 'N' Barnes Publishing and Distribution. 1885473737.
Diagnostic Manual -- Intellectual Disability (DM-ID): A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability. (2007). Fletcher, R., Loschen, E., Stavrakaki, C., & First, M. (Eds.). Kingston, NY: NADD Press.
The National Association for the Dually Diagnosed (NADD), in association with the American Psychiatric Association (APA), developed a Manual that is designed to be an adaptation of the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition—Text Revision (DSM-IV-TR).
Diagnostic Manual-- Intellectual Disability (DM-ID): A Clinical Guide for Diagnosis of Mental Disorders in Persons with Intellectual Disability. (2007). Fletcher, R., Loschen, E., Stavrakaki, C., & First, M. (Eds.). Kingston, NY: NADD Press. A shorter volume, has been abridged for clinical usefulness. It focuses on issues related to diagnosis in people with ID, the limitations in applying DSM-IV-TR criteria to people with ID, and adaptation of the diagnostic criteria.
Dual Diagnosis Community of Practice News, December 2005, Volume 1, Issue 1 Team based learning and education through videoconferencing for clinicians representing dual diagnosis programs. Chair, Facilitator: Debbie Champ, RN. Ottawa: 613-722-6521, ext. 7136.
Dual Diagnosis: An Introduction to the Mental Health Needs of Persons with Developmental Disabilities English Publication
This book offers new insights from research and practice in the field of dual diagnosis. It is a comprehensive text designed to update our knowledge and understanding concerning mental health aspects in persons with developmental disabilities. It is essential that persons who work in this field have access to the latest information and training so they can provide the most effective service. This book is designed for that purpose.
Double Diagnostic: Introduction aux besoins en santé mentale des personnes présentant une déficience de développement French Publication
Dysphagia Resource Center Resources for swallowing and swallowing disorders.
Education and Training Resources in Dual Diagnosis - A Report for the Education Task Group of the Dual Diagnosis Implementation Committee of Toronto. Prepared by Lori Ann Blessing, M.A. September 2001.
The Estia Centre is a training, research and development resource, with a Publications link, for those who support individuals with developmental disabilities or dual diagnosis. It is a UK site so note that the term learning disabilities is used to connote developmental disabilities.
http://groups.yahoo.com/group/ABA-BTsYahoo group for behaviour therapists working with individuals with developmental disabilities (children and adults) to share ideas and learn.
Guidelines for Managing the Client with Intellectual Disability in the Emergency Room
A Handbook on Dual Diagnosis: Supporting People with a Developmental Disability and a Mental Health Problem, 3rd edition, 2005 by Jo Anne Nugent. This popular Handbook has recently been updated to include the most current information on dual diagnosis. Designed as a basic introduction to dual diagnosis for staff, post secondary students, and families, it covers the topics of diagnosis, prevalence, predisposition, pharmacology, and therapy. Also reviewed are 7 major mental illnesses and how these present in persons with a developmental disability. The final chapters provide a comprehensive approach to assessment with forms for data collection, planning, and consultation, plus a section on how to distinguish between mental illnesses and behavioural issues. The Handbook is currently being used as a textbook in 7 Ontario community colleges. Purchasers can request a free CD which is appropriate for educators and trainers. ISBN 0-9738455-0-3. Price: $40.00 plus $3.00 shipping. A quantity discount is available for purchases of 10 or more books. To order please contact Jo Anne Nugent at 905-891-1790 or jnugent@nugenttraining.com
Health Care Guidelines for Individuals with Down Syndrome: 1999 Revision (Down Syndrome Preventive Medical Check List) Reprinted from Down Syndrome Quarterly, Volume 4, Number 3, September, 1999. Edited by William I. Cohen M.D. for the Down Syndrome Medical Interest Group.
Health Evidence Bulletins Wales Learning Disabilities, a.k.a. intellectual/developmental disabilities. On epidemiology, risk facotrs, prevention, behavioural disturbance, etc.
The International Certificate Programme in Dual Diagnosis Intensive training courses in habilitative mental health for persons with developmental disabilities. A certificate programme offered by Brock University, St. Catharines, Ontario, Canada in association with Niagara University, Lewiston, New York, USA and the NADD (National Association for the Dually Diagnosed). Courses are offered in June each year.
Contact email: dualdiagnosis@brocku.ca
International Journal of Nursing in Intellectual and Developmental Disabilities is dedicated to provide all nurses with free ongoing learning opportunities that are easily accessed, current and relevant to their education and experience, enabling them to provide quality nursing services and support to people with intellectual/developmental disabilities and their families worldwide.
Journal of Mental Health Research in Developmental Disabilities The official publication of the National Association for the Dually Diagnosed (NADD) is an interdisciplinary research journal that reports original scientific and scholarly contributions to advance knowledge about mental health issues among persons with intellectual disabilities and related developmental disabilities, especially autism spectrum disorders and genetic phenotypes. Begins publication in 2008.
The Dual Diagnosis Implementation Committee of Toronto, Education Task Group with representation from developmental, mental health, colleges and university sectors has developed a Knowledge and Skills Self Assessment Tool for Dual Diagnosis. The tool can be used by providers across the sectors to evaluate their skills. The tool was piloted at the Dual Diagnosis Cross Sector Front Line Staff Forum last March and indivudually by mental health and developmental service agencies in Toronto. It has been found useful for personal self-assessment, group assessment and/or to support pre and post evaluation of training programs. Questions cover areas related to current level of knowledge (acquired through education, experience, observation and supervision) and skill (application of knowledge/demonstrated ability in practice) with individuals with a developmental disability and mental health needs (i.e. dual diagnosis). Topic areas include developmental disability, mental health, assessment and intervention strategies. For a summary of the pilot results and/or copies of the tool contact susan_morris@camh.net. The Dual Diagnosis Program at the Centre for Addicition and Mental Health will also compile the results in an Access file for your group.
Learning about Intellectual Disabilities and Health (St. George's University, UK). The page on Families provides a refreshing and clear family perspective. There is also a good bibliography at the end of the Family Issues article. Note that this is a web-based learning resource for medical and health care students and practitioners.
Mental Health Aspects of Developmental Disabilities A multidisciplinary journal on clinical practice, research and community support. Abstracts of articles and order form for specific editions.
Ontario Association of Behaviour Analysis (ONTABA) Demonstrates leadership, knowledge, and innovation in education, training, and research for the ethical and effective application of behaviour analysis. Information, resources, discussion groups, etc.
The Ontario Developmental Services Career Connections Grant The Ontario government offers grant opportunities for up to 20 college and university students who want to get hands-on experience in the field of developmental services. It provides up to $4,500 in financial support for students in the practicum component of their degree/diploma as well as eligible travel expenses. Field placements are available at almost 40 community agencies across Ontario that provide specialized supports for adults with a developmental disability.
The grant is an opportunity for you to:
Eligibility requirements: To qualify for the grant program, applicants must have good academic standing in one of the following disciplines:
To apply: This grant program is funded by the Ministry of Community and Social Services and is administered by the Northeast Mental Health Centre in cooperation with the Ontario Association on Developmental Disabilities. For more information about the grant and how to apply, please contact:
Grant Assistance Program Administrator
Northeast Mental Health Centre
Tel: (705) 675-9193, ext. 8411; Toll free: 1-866-989-9299; Website: http://www.dsgrant.on.ca
Oral Care Training Programs for Direct Care Staff available through Specialized Care Co. along with other products.
“Psychosocial Interventions for People with Intellectual Disabilities and Mental Ill-Health.” Medscape Today from WebMD. Posted 08/30/2007. Dagnan, Dave. (2007). Current Opinion in Psychiatry, 20(5):456-460. Registration required at no charge. "The mental health of people with intellectual disabilities is affected by psychosocial factors, but little is known about psychosocial interventions in this group. What does recent research indicate?”
Respite Worker Training Course A new open-entry, self-paced online course designed to prepare individuals to work in respite support situations. Respite support, having someone temporarily fill in as care giver, allows primary care givers to rest and recharge their batteries.
Course Outline
Welcome and Introduction
Module 1: The World of Respite Support: An Overview
Module 2: People You Will Support
Module 3: How to Support a Person in a Meaningful Life
Module 4: Communication
Module 5: Boundaries
Module 6: Personal Care
Module 7: Creating a Positive Environment
Module 8: Confidentiality
Module 9: Health and Safety
Module 10: Abuse
Module 11: Closure
Module 12: Quiz and Summary
Summary Learning Objectives
By the end of this course, you will be able to:
Successfully Supporting People With Prader-Willi Syndrome: A Handbook for Professionals order form
Written by Jo Anne Nugent, Nugent Training and Consulting Services
The Handbook for Professionals provides practical information about best practices in supporting people with PWS. The primary focus is on staff who work on a day-today basis with people with PWS, though the information can also be helpful for families and other professionals.
Contents:
1. An overview of Prader-Willi Syndrome
2. Characteristics of PWS
3. Service delivery: Philosophy and General Guidelines for Practise
4. Weight Control: Food and Exercise
5. Behavioural Strategies
6. Early Intervention
7. The School Year
8. Residential Services
9. Vocational Programs and Day Activities
10. Staff Training
11. What Does the Future Hold?
Available for purchase from Ontario Prader Willi Syndrome Association (for $26.00), 2788 Bathurst Street, Suite 303, Toronto, Ontario, M6B 3A3; Tel: 416/481/8657; Web: www.pwsnetwork.ca; Email: info@pwsnetwork.ca
World Health Organization (WHO) Has articles on aging and intellectual disabilities.
Miscellaneous Resources
Canadian Collaborative Mental Health Initiative The goal of the Canadian Collaborative Mental Health Initiative (CCMHI) was to improve the mental health and well-being of Canadians by increasing collaboration among health care providers, consumers, families and caregivers - so that Canadians in need of mental health care services, as well as their caregivers and families, would have improved access to mental health care prevention, promotion and services through their primary health care provider.
Income Security Advocacy Centre The Income Security Advocacy Centre works with and on behalf of low income communities in Ontario to address issues of income security and poverty.
Local Health Integration Networks (LHINs) Web-based updates from the Ontario Ministry of Health and Long-Term Care on restructuring the health care system into LHINs.
The Ontario Health Promotion E-mail Bulletin (OHPE) A weekly newsletter for people interested in health promotion produced by the Ontario Prevention Clearinghouse and the Health Communication Unit. Provides information on workshops, conferences, job postings, projects, issues and resources. The July 2003 publication focused on decreasing barriers faced by people with disabilities.
Training Events
NADD, The National Association for the Dually Diagnosed lists training events in their "Conference Calendar" section. NADD also offers a teleconference series as well as webcast-online seminars which are digitized versions of select presentations delivered in a "pay-per-view" manner. These seminars were video taped at NADD national and international conferences and feature renowned experts in the field of mental health care for persons with developmental disabilities. Nearly all of these seminars are 90 minutes in length. You can view your selected seminar as often as you want within 24 hours of first viewing. The topics covered include: administration & systems, aging, counseling & therapy, diagnosis & assessment, drug therapy, family issues, offenders, program models, research, residential services, social & sexual issues, staff training and syndromes. Members pay $9.95 US. nonmembers pay $12.95 US.
Regional Support Associates Educational workshops and videoconferences in Southwestern Ontario.
November 12-14, 2008
NADD 25th Annual Conference – "A Quarter Century of Awareness: Assessment, Treatment & Policy Advances (ID/MH)"
Sheraton Fallsview Hotel, Niagara Falls, Ontario, Canada
http://www.thenadd.org
Archives
November 27, 2006 Letter to the Minister of Health re: Canadian Mental Health Commission and Citizens Living With Developmental Disabilities and Dual Diagnosis (2 page PDF)
May 2, 2006 Backgrounder: Opportunities and Action - A New Vision for Developmental Services in Ontario. Ministry of Community and Social Services (MCSS). (2 page PDF)
May 2, 2006 Backgrounder: Record Investments in Community-Based Supports Help People with Developmental Disabilities. MCSS. (2 page PDF)
May 2, 2006 News Release: McGuinty Government Makes Historic Commitment to Stronger Services for People with a Developmental Disability - Budget Funding and Transformation Plan Mean Better Supports, Greater Independence for Thousands of Ontarians. MCSS. (2 page PDF)
May 2006: Opportunities and Action - Transforming Supports in Ontario for People who have a Developmental Disability. MCSS. (53 page PDF)
Cover letter to the Deputy Minister, MCSS
re: Transformation Agenda
Response to the Ontario Government Transformation Agenda For Developmental Services: Meeting the Health and Mental Health Needs of Individuals with Developmental Disabilities Prepared by: Task Group of the NADD Ontario Chapter. December 2004.